So many medical bills!

One thing I have noticed about having a child with Turner Syndrome is the crazy amount of medical bills we have. Don't get me wrong, insurance covers a good chunk of it but a lot of it we pay out of pocket. I was actually just on the phone for an hour getting on a payment plan through our doctors office because between Ryker, Callie, Brooke, Hunter, and Zayden we have pretty much financed any big purchases our pediatrician has made-YOU'RE WELCOME! I never realized until I had kids how truly expansive everything is. I just thought they needed some toys, clothes, and love but no you like actually have to pay for stuff. Luckily, we had a super nice lady on the phone who understood that we had a bunch of back due payments(cause she could see them and saw we hang out there a lot) and was nice enough to make our monthly payment not too insane. However, that doesn't help with all the other things we pay out of pocket for Brooke and her Turner Syndrome. One of the things we spend a lot of money on is diabetes care, if you know anyone with diabetes you know it's a super expensive disease. Depending on your insurance most of these things are covered, for ours we were the unlucky ones who didn't have much coverage. Her insulin pump was covered, thank God! But, her glucose monitor was not covered and we decided it was something she really needed it because of her age and the fact she had been using one in the hospital and was pretty in love with it. The glucose monitor we have is the Dexcom, we love it and can't imagine doing this without it however it is more than $5,000 per year for her to have this. Our insurance is only covering part of that and we still pay around 2,000-3,000 per year for this device. I am still hoping and praying that we find a cure for diabetes so I don't have to worry about how we'll continue to afford this, because I sense the next few years getting more expensive. I already know insurance plans will be changing and I'm scared about it, this isn't something you should have to worry about. To worry if your kid is going to live or die because of money? How is that fair? It's time for a cure for Type One.